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Dementia Education Online

Module 5: Younger Onset Dementia (YOD)



Younger Onset Dementia (YOD) refers to dementia with an onset of symptoms in people under the age of 65. These symptoms may include problems with memory, planning, language, behaviour and/or function.

People with YOD have very different needs from older people with dementia. They may have young partners and children still living at home, are often still working and driving, and may have significant financial commitments.

It is important to understand the unique aspects of YOD in order to provide optimum care. The following material is intended for health professionals.


The aims of this learning module are to allow participants to:

  • Learn about the prevalence and main causes of YOD
  • Learn about screening for and diagnosis of YOD
  • Gain an understanding of the behavioural symptoms associated with YOD and their importance
  • Gain an understanding of the service provision needs of younger people with dementia.


By the end of this learning module, participants will:

  • Know the prevalence and main causes of YOD
  • Know how to screen for YOD and know about referral pathways for further assessment
  • Understand the importance of behavioural symptoms in YOD
  • Be able to provide services that meet the needs of people with YOD and their families.

How to complete this module

To complete this learning module, work through the activities associated with the four content focus areas and complete the four learning activities.

References have been provided to enable you to complete the module, and the range of learning activities provided will facilitate your learning about these topic areas.

Content Focus Area

This learning module is built around four content focus areas:

  1. The Prevalence and Causes of YOD
  2. The Screening and Diagnosis of YOD
  3. Behavioural Symptoms and YOD
  4. Service Provision for YOD.
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